Showing posts with label Autism. Show all posts
Showing posts with label Autism. Show all posts

Monday, May 14, 2018

When your Child Struggles with Handwriting and Fine Motor Activities

One of the reasons we homeschool for Caleb is we often have to do things differently.  His brain is wired different by his Autism so he has to learn in different ways.  Homeschool gives us the flexibility to be the different he needs. When we began to introduce school time to him we hit some roadblocks and learned exactly how differently we would need to do things for him to progress.   

Many skills came easy and one of the professionals who saw him even called him gifted.  There were still areas that he struggled with.  There was no tricking him into writing.  We had to be creative!  How do you complete a handwriting workbook when he won't pick up a pencil?  I gave up even trying for the first half of his kindergarten year. we put his workbook away because it led to tears.  I knew he knew how to form letters but doing it on paper was a struggle.  He wasn't ready for it yet so we waited and did other activities instead we read books, we did cut and paste, we did math work books.  First and foremost I wanted him to love learning, tears had no place in our classroom.  It meant we needed a new way to teach it, and I didn't know what that was.  

One day quite by accident we happened upon a new idea. He was copying his sisters drawing on the chalkboard of an octopus.   drawing lines off a circle and calling them tentacles.  And since all works of art have titles, I asked him to label his drawing, and that was when the magic happened!  

Me: Caleb that's a great drawing, what is it?
Caleb: ITs an octopus.
Me: that's great, lets label it.  (I had no idea if he would take the bait.)
Caleb: Ok how do you spell Octopus, i know it starts with an O?
Me: O-C-T-O-P-U-S, to which he dutifully wrote each letter in a mostly straight line!
To say we celebrated was an understatement.

Around the same time, a friend who also has a struggling writer told me about a workshop she had attended.  She explained to me that writing vertically, like on a blackboard, is a building block to writing on paper. (More information from an Occupational Therapist HERE)  It was all the confirmation I needed to embrace our new writing method!  A few times a week he would pick out an animal and I would tell him the shapes to draw and add to his picture and we would label it. IFten this was followed by a picture text to daddy or (out of state) grandma to share our accomplishment.  We didn't touch a handwriting book that year but we did go through most of the animals in our Step by Step Drawing Book

By the end of the year his animals and his handwriting was more legible and his confidence had improved.  He was able to create and express himself.  He really could write after all, and he was ready to write on paper without any tears.  He completed his Handwriting book with no tears, in record time during the last month of the year.  



Sometimes our differently wired kids remind us that the skills they need are there all along we just have to work with them to find the way to release the skill and talent.  This was 2 years ago, and he has slowly but surely showed me that he wants to write but he is doing it in his own time and his own methods.  A generic sentences aren't worth being copied in the book but give him a story about Star Wars and he will copy the whole page.  Its taken 2 more years but he is finally writing in a journal and picking up a pencil to draw his own pictures.  It takes time, Mama, It takes time.  


Friday, April 20, 2018

Autism at our house (2018 edition)

TIE fighter, our VIP & Blankie
We are well in to April which is Autism month.  The saying goes when you have met one child with autism you have met one child with autism.  So here is peak into our complicated world recently.

Last weekend we came thisclose to withdrawing him from a 2 day kids program at a family conference we were attending.  The sign up emphasized the loud environment and large groups the kids would be in and that special accommodations would be difficult for kids with special needs.  All things that we foresaw being barriers to him having an positive experience.

A few months ago he attended a Kids Night Out at the church we were attending, he had talked about it all week long and was super excited to play laser tag, a brand new experience for him.  It was in a space that was familiar and the staff was aware of his needs, (or so we thought).  After a successful drop off for him and his sister, I headed to the store, I hadn't gotten 10 minutes down the road when the phone rang.  He had had his first meltdown of the night.  Yes, I said first.  I returned to the event and helped him gather himself.  The painful part for me as mom was that he desperately wanted to stay and and play, but it was a stressful environment for him with chaos and crowds.  We calmed down and made a plan.  I left him and went home for dinner to be interrupted again and forced to stay with him so we could do what he wanted to do, since there was no one else to support him and look out for him in the crowds of kids. 

So with that recent experience we didn't expect the conference program to go well.  When we toured the program the day before they started he saw the bounce house. He wanted to do it.  And since only kids who attend the program get to use it he thought he would try it out.  He successfully attended all 4 sessions and had a great time.  We were so proud of him.  He used his backpack full of tools to help himself when he needed it.

Later this week we found ourselves at his first Soccer Practice.  He decided to play soccer on his own with his Physical Therapist and we signed him up.  I thought the cleats and shinguards would throw off his sensory systems but they didn't.  Shoes can be an issue.  We got the field, he asked me where the hot dog stand was, I didn't know one was required.  We met his inclusion aide and started practice with the team.  All was going OK until he was asked to repeat a drill.  He hit his breaking point, he asked,
"If everyone has a good working memory bank and I already learned this, 
why do i have to waste time doing it again?"  
I tried to reason with him, I reminded him he repeatedly does math problems, to which he reminded me I don't make him do the exact same ones again.

I didn't have an answer for him.  This set off a meltdown which included screaming and refusal to participate.  He shut down, over repeating an activity, I didn't see it coming, did you?  He sat safe in my lap the rest of practice watching his team scrimmage and we left early.

Did he have trouble because we spent most of the day away from home?  Was he still tired from our recent vacation?  Its tough trying to prepare a child to be in just the right mood for a given activity, to arrange the rest of your week around it so that he can do what others take for granted.

Our life is never boring and always changing.  I never know what might be a trigger.  We go with the flow and work towards the goal.  This is autism at our house.


Friday, August 22, 2014

A Birthday to Celebrate

Caleb turns 4 this year, and he is getting his first party.  Its a reason to celebrate for our whole family. He has grown so much in the last year.  This time last year we started walking down a dark tunnel with no idea where we would end up.  All we knew is he wasn't acting typical for an almost 3 year old.  Nothing huge but lots of little things that added up to concern.

  • He didn't ever seek out a playmate at the park
  • He hadn't mastered the open cup
  • He needed a bib for meal time.  
  • He had an abnormal gait to his running
  • He was uninterested in coloring
  • He didn't seem interested in becoming independent.  
  • He would answer our questions in unrelated quotes from his favorite movies.

At his birthday party he just stared at
his presents, he needed help to open them.

We started inquiring with the doctor who sent us to specialists and therapists.  And we began dragging Caleb all around town to see different people to help us understand where he should be and why he was behind.  He saw a neurologist, Behavior Specialist, Developmental Pediatrician, Occupational Therapists, Speech Therapists and the most recent has been Behavior Therapist.  

We wanted to find the "labels" that fit him so we could push past them and know what we were dealing with.  Initially he was given 2 labels that were both new to us.  Hypotonia, also known as low muscle tone or "floppy baby syndrome".  The second label was Sensory Processing Disorder, the information gained by our senses is not processed correctly and cause problems doing the otherwise routine activities.  Sounds may feel louder than they are, or an itchy tag on a shirt may feel like a horrid rash.  As a young child is learning about the world around them and developing basic skills these can cause fundamental problems.  So we began the prescribed regiment of Occupational Therapy and Speech Therapy for Oral Motor skills.

Later after seeing more specialists and getting a second opinion, Caleb was given 2 more labels.  ADHD, and Autism Spectrum Disorder: Aspergers.  Due to recent classification changes Aspergers is now under the umbrella of Autism Spectrum Disorder, it is not a separate diagnosis.  I have seen attributes of ASD in Caleb for awhile and was relieved to get it on paper.  We added Behavioral Therapy to our weekly routine and began looking at school options for our extra special, and exceptional boy.  

Autism is a neurological disorder. It's not caused by bad parenting. It's caused by, you know, abnormal development in the brain. The emotional circuits in the brain are abnormal. And there also are differences in the white matter, which is the brain's computer cables that hook up the different brain departments.  -Temple Grandin


He is still Caleb, he is our Caleb. 
Now we have the tools to help him achieve all that he can. 


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